patient engagement

Patient Engagement

Patient and family engagement continues to be an important focus for the Centers for Medicare and Medicaid Services’ (CMS) and therefore is a large part of the work required of the ESRD Networks.  CMS’ definition of patient and family engagement involves “the perspectives of patients and families directly into the planning, delivery and evaluation of healthcare, thereby improving the quality and safety of the care provided.” Patient engagement involves patients taking an active part in their own health care. Successful patient engagement in action is a shared responsibility between patients and their families, healthcare practitioners and healthcare administrators. Patient engagement is not about patients adhering to or complying with the treatment plan. Rather it is the patient being an active part of the decision making process to define their individualized treatment plan.

Heartland Kidney Network is committed to assisting facilities in meeting the CMS and Network goal of improving patient engagement at the facility level. The Network has developed resources to assist facilities to engage patients in direct patient care but also to incorporate the “patient voice” in quality improvement at the facility level.

Kristin Carman of the American Institutes for Research and coauthors offered a framework that conceptualizes patient engagement taking place on three main levels. The three main levels include direct patient care, organizational design and governance, and policy making.

The Network not only incorporates patient engagement into all of our Quality Improvement Activities but we provide and support resources for all the Network facilities to use. These include the “My Life, My Choices: Knowledge is Power” project resources, the Network Patient Representative Program, Topic of the Month Sheets, the “Be Active In Your Care” Patient Engagement Calendar, webinars and supporting resources to increase patient participation in their Plan of Care, incorporating patients in the facility QAPI and/or Governance and development of patient groups. Through facility reporting we gather information about wonderful ways facilities are engaging their patients then we share it through the Patient Engagement Showcase, project roundtable calls and the monthly e-newsletter.  We encourage every facility report at least one activity throughout the year.

Patient Engagement Activity Reporting

If you are in a Network QIA use the link on your Project-At-A-Glance and use the following link if you are not reporting for a QIA.

For an overview of Patient Engagement and the Network resources, view the webinar “Incorporating Person and Family Engagement in your Dialysis Facility”.

Incorporating Person and Family Engagement in your Dialysis Facility  

2019 Patient Engagement Calendar

2019 Patient Engagement Calendar

Download 835.40 KB
2019 Patient Engagement Calendar Spanish

2019 Patient Engagement Calendar Spanish

Download 888.27 KB

Lobby Day Resources

Lobby days can be an effective strategy to increase patient engagement. Use the checklist and idea sheets to work with your team (including your Network Patient Representative) to plan your next lobby day on preventing infections, home dialysis, transplant or vocational rehabilitation. Make sure to take a picture and share your activity and results through the Patient Engagement Reporting form to be included in the Patient Engagement Showcase.

my kidney kit

topic of the month

patient showcase

plan of care

QAPI

patient groups

The Network is asking all facilities to identify at least one patient/family member as a Network Patient Representative for their facility. The Network works with the Patient Advisory Council to continually evaluate and improve this NPR program in order to provide better support to the NPRs in the Network. Visit the NPR program page to get more information on the program, how to apply to be a NPR, download the Monthly NPR Connection Call schedule, NPR Handbook as well as facility tools to identify a NPR.

Resources

“My Life, My Choices: Knowledge is Power” project resources continue to be supported with My Kidney Kit pages being updated and added as well as a new a “Be Active In Your Care”- Patient Engagement Calendar. The expectation is that all facilities use the MY KIDNEY KIT for patient engagement with a minimum of 10% of patients.  The My Clinic Plan offers ideas for assessment, planning and implementation of facility patient engagement activities. Pages are also available in Spanish, online at MyKidneyKit.org. Additional programs and resources such as the “All About You Review” Plan of Care Toolkit and “My Journey with Kidney Disease” patient video are also available help facilitate patient engagement.

Network Patient Representative (NPR) Program

The Network is asking all facilities to identify at least one patient/family member as a Network Patient Representative for their facility. The Network works with the Patient Advisory Council to continually evaluate and improve this NPR program in order to provide better support to the NPRs in the Network. Visit the NPR program page to get more information on the program, how to apply to be a NPR, download the Monthly NPR Connection Call schedule, NPR Handbook as well as facility tools to identify a NPR.

Resources

My Life, My Choices: Knowledge is Power

“My Life, My Choices: Knowledge is Power” project resources continue to be supported with My Kidney Kit pages being updated and added as well as a new a “Be Active In Your Care”- Patient Engagement Calendar. The expectation is that all facilities use the MY KIDNEY KIT for patient engagement with a minimum of 10% of patients.  The My Clinic Plan offers ideas for assessment, planning and implementation of facility patient engagement activities. Pages are also available in Spanish, online at MyKidneyKit.org. Additional programs and resources such as the “All About You Review” Plan of Care Toolkit and “My Journey with Kidney Disease” patient video are also available help facilitate patient engagement.